My Whole Expanse I Cannot See…

I formulate infinity stored deep inside of me…

Jun 26

Enter Cher…

Category: Life

Okay, life has officially taken on a fuzzy, dream-like quality… I was tweeted about and followed by Cher!

I mean, Cher! We need voices like hers in the fight.

4 comments

Jun 25

…and Ryan Gosling read the blog

Category: Life,Tattoos

So, somehow or other, Ryan Gosling got ahold of my blog post about being on The Last Word, and he tweeted about it…

Now, those who haven’t been reading the blog from since way back when probably don’t realize that Ryan Gosling is in my all time favorite movie, Stay. I have two tattoos from that movie, it helped me get through the first few months after I was trached, after Sara left that first time before the last time.

Ryan Gosling as Henry Letham…

“Apparently, I can”
One of my favorite lines from Stay…

Yes, having Ryan Gosling mention me in a tweet meant a lot, it was really fucking cool.

SaveSave

7 comments

Jun 25

I was on The Last Word!

Category: Life

So, on Thursday I posted a tweet after watching folks on MSNBC talk about how Trumpcare is basically going to DESTROY Medicaid, mentioning who would be affected by the cuts… everybody but people with disabilities. Even after the brutal video showing disabled protesters being dragged from Mitch McConnell’s office, we still weren’t getting much coverage. I posted my tweet, and it FLEW! Rachel Maddow did a story on the protesters, a really spectacular story, and my tweet REALLY FLEW. Then, it was Friday, trach day.

Now, I never sleep a wink the night before trach day, so I’m pretty beat before the fun even starts, and the fun started much later than usual. I didn’t get into the O.R.  until after 4pm. It was actually just as we were headed to the O.R. that my mom got a phone call from a producer from MSNBC… Apparently, somehow, we got invited to talk about the Medicaid disaster on one of my absolute favorite shows; The Last Word with Lawrence O’Donnell (though, Friday night, the equally badass Ari Melber had the helm). I really don’t know how much my tweet had to do with anything, there’s a lot of behind-the-scenes stuff I’m fuzzy on, but nevertheless, I was on The Last Word!

I ended up having to have two trach changes, as the first one didn’t take, so I didn’t get out of recovery, out of the hospital, and back to the house until after 7pm. Normally on trach day, I’d eat a little something, take some more pain medicine, an Ativan, and check out for awhile. Friday was extra trying because of the double traches, but I wasn’t going to miss The Last Word. A little juice, Ativan, some medicine after we got to the studio just shy of 9pm, everything was running as smoothly as my Apple Watch. Except… I totally hadn’t written what I was going to say to Ari. Fortunately, words always come to me when the chips are down, I finished typing with, like, fifteen minutes to spare. I simply wanted to convey that we all have hopes and dreams, and though none of our hearts’ desires are guaranteed, the Founding Fathers gave everyone who participates in the beautiful American experiment the right to be free to pursue their happiness. I hope I used the right words.

At any rate, locking people with disabilities away in institutions destroys  the image of America as the Shining City on a Hill.

Being on The Last Word was one of the Top Seven coolest experiences of my really, really, really unusual totally usual life.

SaveSave

SaveSave

SaveSave

SaveSave

SaveSave

24 comments

Jun 8

WordPress 4.8 is here!

Category: Life

So, we are now running WordPress 4.8, and… it’s nothing drastically different, again. Still, there are some neat new little things, but nothing that wouldn’t be astonishingly boring to most readers.

That’s that, then.

2 comments

Jun 7

WordPress 4.8 tomorrow…

Category: Life

So, WordPress 4.8 is out tomorrow… I’m excited to see what’s new, hopefully something drastic.

No comments

Jun 6

The lyrics game is won!

So, the lyrics game is over… we have a winner! Reader, Eve, rocked out a perfect set of answers to win a bundle of three really spectacular records, The Both, Either/Or Extended Edition, and Mental Illness via the iTunes Store.

Here’s Eve’s display of badassness:

Hi Mike!

Just found your post with story and quizz!

Here goes:

1- Artist The Both. Song: Hummingbird, album: The Both.
2- Artist Aimee Mann, song: How am I different? Album Bachelor No 2
3- Artist : Nirvana. Song: Radio Friendly Unit Shifter. Album In Utero
4- Artist Elliot Smith. Song: Rose Parade. Album: Either/Or. (love that album!)
5- Artist Priscilla Ahn. Song: Lost Cause Album When You Grow Up.
6- Artist Death Cab For Cutie. Song: Champagne from a Paper Cup. Album You Can Play These Songs with Chords.
7- Artist Elliot Smith. Song Angel in the Snow, Album: New Moon. (love that album too:D)

Hope that sums it up! Did I make it?!

Congratulations, Eve, and thanks for reading!

Speaking of reading, if you haven’t had a go at Music in the dark, the flash fiction that started this game, give it a read. I’d love a little more feedback.

 

No comments

Jun 5

Lyrics and what-not… and a game! II

So, seeing that nobody won my lyrics game, though lots of folks viewed it, perhaps the game’s a little too rough. I’m going to give away a few answers to see if we can’t get a winner…

Here’s the lyrics list, with a few answers filled-in. I don’t want to make it too easy. C’non, people, hit the google machine! I want somebody to win!

But I got a message from the hummingbird, he gave me a warning in disguise… 

Just one question before I pack, when you fuck it up later do I get my money back? – Aimee Mann, How Am I Different?, Bachelor No. 2 (Or, The Last Remains of the Dodo)

I love you for what I am not, I did not want what I have got…

Won’t you follow me down to the Rose Parade…

Oh it’s all just a lost cause… – Priscilla Ahn, Lost Cause, When You Grow Up

Drinking champagne from a paper cup is never quite the same and every sip’s moving through my eyes and…

Don’t you know that I love you? Sometimes I feel like only a cold still life, only a frozen still life… that fell down here to lay beside you. – Elliott Smith, Angel in the Snow, New Moon

Like I said, the first person to note the…

Artist

Song title

Record

.…for each song wins a bundle of three of my favorite records, The Both, Either/Or Extended Edition, and Mental Illness via the iTunes Store.

Just leave your guesses in the comments for this post. Comments left on Facebook, or Twitter, or my e-mail, or anywhere else don’t count.

5 comments

Jun 1

Lyrics and what-not… and a game!

So, I wonder… Did any of my readers who read Music in the dark know all the songs playing on the fellow’s iPhone at the story’s end? I picked them at random, whatever popped up on my mix, I used it in the story. It was sort of an exercise, making the story fit the songs, while still keeping the story intact. Two of the songs are super easy, they’ve had plenty of exposure. The others are more obscure, which is a shame, they’re beautiful songs. That said, let’s play a game…

The first person to note the…

Artist

Song title

Record

…for each song wins a bundle of three of my favorite records, The Both, Either/Or Extended Edition, and Mental Illness via the iTunes Store.

Just leave your guesses in the comments for this post. Comments left on Facebook, or Twitter, or my e-mail, or anywhere else don’t count.

2 comments

May 27

Music in the dark

Category: Creative Flash

It’s dark. The room’s dark, the world’s dark, his thoughts are dark. The electricity gave up and gave out last night, or the day before, or what the fuck ever. No more tv, no more internet, no anything if it isn’t running on batteries, and those batteries aren’t long for this world either. So, here he is, in the dark, in his shit-hole bedroom, in his shit-hole apartment. Though, the apartment may as well be on Mars, it’s some alternate reality, he’d need a goddamn time machine to even see it again. He locked himself in the bedroom because it was the last lock left, the end of the line; lobby-door, up four floors, apartment door with its deadbolt. Broken. Broken. The weight of bodies and the weight of time breaking locks and smashing doors until only this last lock, this last door remains. He can hear them scratching, pressing, fumbling against the door and that last lock that won’t hold them back. They’re the tick-tock of the tiny gears inside the clocks that killed Christ. They don’t stop.

He blindly sweeps his hands across the floor, groping, searching. He knows it’s here somewhere, it has to be here. He bumps his hands against a pizza box, fingers grazing greasy cheese, stale bread, magazines, a bottle of MD 20/20. He’ll keep that, thanks much. Blankets, shoes, dog-eared paperbacks, so much useless shit. A t-shirt, it smells like her, the two sizes too big plain black t-shirt she used to sleep in, wore it like a nightgown. Feeling it in his hands, smelling the lilac shampoo and salt-smell of her sweat, simple scents of her, it physically hurts him. Sitting here in the dark, feeling the loss of her all over again, tears sting his eyes. He remembers the sense of peace he felt, always, just being near her. He adored her voice, her thoughts. Her everything. At night she’d slip on her dark shroud, that long silly shirt and nothing else, lying next to him in bed, her arm across his chest, her head on his shoulder. They made love in the mornings, she’d kiss him awake, smiling to say, “Hi there… How’s you?” They’d talk, she liked to tell him her dreams. Mornings were theirs, no matter what. She’d hold him close, knowing he’d be ready for her, ready to be taken deep inside her. He remembers how it felt to fade into her, to get lost in her hazel eyes as she asked him to come for her. He holds the shirt to his face, scent opening the way to memory, so vivid, so white hot and right now. Something heavy hits the door and the memories crumble like ash. Then is gone, she is gone, and that’s fucking that. He sets the shirt near the bottle of MD 20/20, the body and the blood, things deemed sacred.

Digging around under the bed, hands bump into something clunky, a wire running from the clunk to something small, sleek, glassy smooth. Yes and fucking yes, he finally has it, his iPhone tethered to his cozy leather-bound headphones. Old-School headphones, analog, faithful, no digital wireless Bluetooth fuck-all. So long as the phone has some life left, the headphones won’t let him down. Tapping the glass, and the room is bathed in blue white soft LED light, still plenty of spark in this particular battery. They’re pounding on the door now, he slips on the headphones. Soft leather cradles his head, the ear cuffs are big enough, padded enough to turn the pounding into a muffled thumping. Better, better, but he doesn’t want to hear them at all. He doesn’t want to know they’re there. Tap swipe swipe up down up a little tap, and his head is filled with music…

But I got a message from the hummingbird, he gave me a warning in disguise…

Fitting.

Just one question before I pack, when you fuck it up later do I get my money back?

He doesn’t know. He was always scared she’d go away.

I love you for what I am not, I did not want what I have got…

He closes his eyes. No, he absolutely doesn’t fucking want anything he’s got.

Won’t you follow me down to the Rose Parade…

The songs keep playing, reminding him of other times, other places. Thoughts leading to thoughts leading to thoughts.

Oh it’s all just a lost cause…

Drinking champagne from a paper cup is never quite the same and every sip’s moving through my eyes and…

He grabs the bottle of MD 20/20, takes a long pull. It’s awful, Kiwi and alcohol, some kind of nightmarish children’s cough medicine, but it does the job.  Warms his chest, blurs all the hard edges. He feels the floor shudder, an echo of what’s happening to the door.

Don’t you know that I love you? A loud cracking of wood that he feels more than he actually hears. Sometimes I feel like only a cold still life, only a frozen still life… He feels their foot steps, smells the shit and piss and death. He puts her shirt to his face one last time, pure, clean, safe smells. He fills his mind with her, her smooth pale skin, warm hazel eyes, eyes to lose himself in and never come back. Hands on his shoulders, rough hands, teeth at his throat, pain so bright. Still, he doesn’t open his eyes, doesn’t stop listening to the music.

that fell down here to lay beside you.

9 comments

May 27

Something experimental

So, I wrote something, short fiction, kind of experimental. Sort of a stream of consciousness, writing in the moment kind of thing. If it’s really awful, post your hatred in the story’s comments. Really, any feedback is of value; love, indifference, hate, whatever… post away!

Said experimental story is forthcoming.

 

No comments

Next Page »